The Pathway to Patient Data Ownership and Better Health (2024)

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    October17, 2017

    Katherine A.Mikk,JD1; Harry A.Sleeper1; Eric J.Topol,MD2

    Author Affiliations Article Information

    • 1Open Health Services, The MITRE Corporation, Bedford, Massachusetts

    • 2Scripps Translational Science Institute, La Jolla, California

    JAMA. 2017;318(15):1433-1434. doi:10.1001/jama.2017.12145

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    • Jorge L.Contreras,JD; JohnRumbold,PhD; BarbaraPierscionek,PhD

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    • Katherine A.Mikk,JD; Harry A.Sleeper; EricTopol,MD

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    Digital health data are rapidly expanding to include patient-reported outcomes, patient-generated health data, and social determinants of health. Measurements collected in clinical settings are being supplemented by data collected in daily life, such as data derived from wearable sensors and smartphone apps, and access to other data, such as genomic data, is rapidly increasing. One projection suggests that a billion individuals will have their whole genome sequenced in the next several years.1 These additional sources of data, whether patient-generated, genomic, or other, are critical for a comprehensive picture of an individual’s health.

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    Mikk KA, Sleeper HA, Topol EJ. The Pathway to Patient Data Ownership and Better Health. JAMA. 2017;318(15):1433–1434. doi:10.1001/jama.2017.12145

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